CEN Annual Conference 4th November 2015


“Wellbeing for Children & Young People with complex and exceptional care needs –
adopting the Children & Young People (Scotland) Act 2014” 


Event Programme


CEN conference: Welcome and Introduction - Debbie McGirr, Lead Clinician CEN

Setting the context: GIRFEC as a model to improve health and wellbeing within the Children & Young People (Scotland) Act 2014 - Bob Fraser, Health Advisor GIRFEC, Scottish Government

Challenges for CEN in meeting the Scottish Health & Social Care agenda  - Beth Frank, Nurse Co-ordinator Complex Disabilities. CEN Vice-chair Education group

Long-term well-being - Children In Scotland with Palliative care needs: launch of National Research project findings(CHAS & University of York) - Dr Lorna Fraser, (University of York) Professor Bryony Beresford, (University of York)

Principles of good transition for CEN - Scott Richardson-Read, Policy and Development Officer, ARC Scotland

Hearing parent and family voices – the role of the 3rd sector in supporting wellbeing  - Jenny Whinnet, Parent

Transition from paediatric to adult health: hearing the voice of young people and parents using Talking mats (project results) - Dr Joan Murphy & Margo Mackay, Talking Mats

Facilitating wellbeing through transition – the role of Self Directed Support (SDS) -  Mark Han-Johnston, Capacity Building and Resource Co-ordinator, SDS Scotland

Social Work experience of using SDS to empower young people & improve wellbeing - Jack Blaik, Social Work


Key Documents:

Children in Scotland requiring Palliative Care Report: identifying numbers and needs (The ChiSP Study) - [PDF] October 2015

Transition from children’s to adult services for young people using health or social care services - NICE guideline: short version Draft for consultation, September 2015

Will anyone listen to us? What matters to young people with complex and exceptional health needs and their families during health transitions  - [PDF] Talking Mats Ltd - October 2015

(2014) Principles of Good Transitions 2 – improving post school transitions. - [PDF] Scottish Transitions Forum

Getting it right for every child (GIRFEC)  -The national approach to improving the wellbeing of children and young people in Scotland.

Self-directed Support in Scotland - Scottish Government's Self-directed Support (SDS)



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