Aim and Objectives

Parents and carers have reported that the decision making processes involved in changing from oral to tube feeding are not always clear to them and that the focus is on the practical and technical aspects. Some practitioners focus completely on the practical aspects and fail to give parents enough time, information and emotional support to come to terms with the loss of oral feeding. The emotional impact of changing to tube feeding is often neglected and that this leaves many parents and children/young people feeling hurt, upset and confused.

This information and education module aims to:

  • Raise awareness of the emotional impact of changing to tube feeding in children with multiple impairments
  • To gain further insight into the feelings of families when their child changes to tube feeding
  • Encourage reflection amongst practitioners and more effective communication between practitioners and parents
  • To identify and share good practice

What do you think?

We asked parents and carers of children with multiple impairments on tube feeding across Scotland about their experiences. What did most parents and carers say?

1. Did you find it difficult to come to terms with your child changing from oral feeding to tube feeding?

Not difficult
A bit difficult
Very difficult

2. Who was the first person to discuss changing from oral feeding to tube feeding?

Speech and language therapist
Dietician
Paediatrician

3. Did they explain the reasons for changing to tube feeding in a way that was:

Clear and helpful
OK
Not clear

Return to How Does it Feel? Acknowledging the Emotional Impact of Tube Feeding.