NMCN CEN Conference on Early Years Support for Families with Children with Exceptional Healthcare Needs
The NMCN for Children with Exceptional Healthcare Needs (CEN) annual conference was held on 27 September 2012 involving 150 parents, carers and professionals. The summary report of the meeting and the presentations are available for download.
- Challenges and opportunities for CEN in providing training for staff with a role in supporting families with a child with exceptional healthcare needs. Dawn Moss, NMCN CEN Lead Clinician
- CEN's role in data collection, audit and tools for healthcare assessment: supporting decisions or raising expectations? Dr Marit Boot, NMCN CEN Manager
- Launch of Words Matter: Early Support/Early Expectations education project. Claire Edwards, Training Consultant
- What early support was available when your child was diagnosed with complex needs? Gael Gordon, parent
- Practitioner Communication: The psychological impact on families. Fleur-Michelle Coiffait, Trainee Clinical Psychologist, NHS Lothian
- Early expectations for families with a child with complex needs and the importance of parent-to-parent support and advocacy. Sophie Pilgrim & Veronica Warrington, Kindred and Alison Corbett, parent
- Building relationships and providing support for special care babies and their families. Dr Una Macfadyen, Consultant Paediatrician, NHS Forth Valley
- Getting It Right for Every Child by providing coordinated multi-agency support after birth or diagnosis. Bob Fraser, GIRFEC Team, Scottish Government.
- Delivering GIRFEC with parents as partners. Dr Karen Naismith & Dr Jamie Cruden, NHS Tayside
- Exploring coordination of care for children with exceptional healthcare needs. Jo Smith, Lecturer, University of Stirling.
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