Support for Parents
It is recognised that parents and siblings require appropriate emotional support at the time that the complexity and vulnerability of their child's situation is recognised. Both parents should be involved, if possible, in discussions and decision making. Appropriate verbal and written information should be provided. Access to a source of information for further questions should be available. Parents should be actively advised of the future decisions and the pressures which are inevitable in the care of children with complex and exceptional healthcare needs and reassured of the support that may be available. Contact with parents and voluntary organisations can be invaluable at this time.
A number of voluntary sector organisations can provide emotional support, bring parents in contact with other parents, and can advise you about financial support. These organisations include: Action for Sick Children (Scotland), ACT, Capability Scotland, CHAS, Children in Scotland, Contact a Family, Family Fund, Kindred (previously SNIP), WellChild and links to their websites can be found on the useful links page or click below.
Useful web sites:
Useful documents:
- Social work leaflet (2010, Edinburgh)
- Advocacy services for parents (2010 Edinburgh, SNIP-KINDRED)
- Their Health Matters (Action for Sick Children Scotland)
- Support for Parents leaflet (Family Fund)
- Moving to Scotland (May 2010, Capability Scotland)
- Family Support Service (Jan 2007, PAMIS)
- Helping Brothers & Sisters Cope (NHS Greater Glasgow & Clyde)
- Managing Stress (NHS Greater Glasgow & Clyde)
- Changes in Behaviour (NHS Greater Glasgow & Clyde)
- About diagnosis - Identify the right professional - Contact a Family
- Concerned about your child-Contact a Family
- Information for families - promoting self care - Contact a Family
- The 'Joe' Report - Making Scotland an Inclusive Communication Nation for him and for everyone else