How Does it Feel? Acknowledging the Emotional Impact of Tube Feeding
The DVD, interviews and reports 'How does it feel' were developed by the National Managed Clinical Network for Children with Exceptional Healthcare Needs, Dr Marit Boot (NMCN CEN Manager), Dr Patricia Jackson (NMCN CEN Lead Clinician), Claire Edwards (Training Consultant), and Juliet Rees (Freelance Film Maker).
50 parents and carers of children with multiple impairments on tube feeding, a young person previously on tube feeding, and a large number of professionals from across Scotland were involved. There are six parts detailed below with 10 reflective learning questions. The work has been supported by the NMCN CEN Education and Training working group.