Acknowledgements

The Pathway of Care for Children with Exceptional Healthcare Needs was developed in 2010 by the Pathway Development Group of the National Managed Clinical Network for Children with Exceptional Healthcare Needs (NMCN CEN) and adapted after suggestions and additional references and good practice documents by members of the Pathway Reference Group and other parents and professionals.

Pathway Development Group NMCN

Dr Patricia Jackson, Lead Clinician NMCN CEN

Dr Marit Boot, Manager NMCN CEN

Claire Edwards, Training Consultant and Parent

Jacqueline Reilly, Children and Young People Discharge Nurse Coordinator, Greater Glasgow and Clyde

Francis Edwards, Palliative Care Nurse Consultant, Grampian

Brian Samwell, Wellchild Nurse

Gordon Linton, Nurse Consultant, Lothian

Sophie Pilgrim, Kindred (SNIP)

Joanna Young, Community Children's Nurse, West Lothian

Alison Siddons, Education, Dundee Council

Pauline Smith, PAMIS

Anne Gornall, Senior SGDP in Paediatric dentistry, NHS Highland

Pat Rankin, Community Children's Nurse, NHS Highland

Additional Contributions Provided By

John Welsh, Social Work & Health, Angus

Donella Clark, Children with Disabilities Team, Aberdeenshire Council

Lesley Horsburgh, General Acute Higher Specialist Nurse, Borders

Katie Rigg, Palliative Care Nurse Consultant, Tayside

Annmarie King, Paediatric Complex Care, Forth Valley

Dr Jacqueline Crum, Consultant Paediatrician, Grampian

Margaret Johnston, Children's Community Nursing, Lanarkshire

Carol Cameron, Gastroenterology Nurse, Grampian

Sandie Young, Interagency Nurse Consultant Children and Families, Highland

Anne Wilson, Development Officer, Action for Sick Children Scotland

Maggie Roscoe, Team leader Children and Families OT Team, Lothian

Carol Rice, Social Work, Edinburgh

Carolyn Baxter, Community Children's Nurse, Lanarkshire

Dawn Moss, Children and Young People Services, Borders

Monica McTurk, Chief Speech and Language Therapist, Head of Special Needs and Galloway

Mark Bevan, Capability Scotland

Dr Sally Harkness, GP, NHS Grampian

Dr Una Macfadyen, Consultant Paediatrician, Forth Valley

Karen Sinclair, Palliative Care Nurse Consultant, Greater Glasgow & Clyde

Breda McLoughlin, Transition Team Co-ordinator, NHS Lothian